Wednesday, April 27, 2011

Meet Bob...

Today was a back poke day- its good and bad. Last time we did a back poke (aka: spinal tap chemo) it didn't go so smooth..... so i was a little anxious about todays back poke. Well, honestly i'm anxious every time we go up there... it just seems that something new comes to light every time we cross that threshold into the clinic... and today was no exception. His blood counts were pretty good considering... he doesn't need a transfusion and has a decent enough immune system to go to school tomorrow if he wants to. The "new" thing was Dr. Afify has decided that since Tucker's leg pains have not gone away they need to take that a further step and get an MRI done on his hips and knees. This will show all sorts of fun things- they are going to mostly "zoom in" on his bones to see what could be going on. She said there are a few things the chemo and the high dose steroids could do to your bones.... and before we do another round of high dose steroids we need to rule out that its not the thing hurting his bones/legs.....
in light of Tucker's history..... and things tending not to go smooth or in a normal direction.... i feel very anxious about this bone scan thing they are going to do- i'm pretty sure they are going to find something crazy like he has gorilla bones instead of human bones....or that he was actually crafted out of popcicles sticks & super glue.... because that is just the type of kid that Tucker is. They are thinking we will get that done next week when we go in for another round of admission chemo for 5 days.

But the highlight for today was Tucker had a great "drug-trip" during his spinal tap... and this is one of the things i look forward to... when he comes out of the drugs he is crazy, giggling... hallucinating... funny little child... those precious moments just warm my heart.. AND i actually happen to have a camera/video recorder with me.....hum..... Everybody want to meet Bob?








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