Won't Miss This

Today is the last day of his 3 day chemo – THANK GOODNESS- this chemo, called ARAC is horrible, nasty, mean, and painful. They have to give him a FULL IV bag (see picture) of this icky stuff every 12 hours for 48 hours and it takes 3 hours to infuse. I mean, doesn’t that just sound horrible enough? But NOOOOOOO… the side effects wins the “what’s more horrible” award in this contest. This stuff causes full body pain-don’t we all just flinch when we hear that?- and Tucker can sure feel that pain. He is getting full doses of morphine to try to keep the pain down and it does take the edge off for a little bit. Everybody who has kids- how does your child act when they are sick and in pain? Most of you are thinking THEY ARE MEAN, GRUMPY, SNARLY, & DOWN RIGHT UNPLEASANT to be around, that is a natural reaction to kids when they are in pain. Sooooooooooooooooo…. that should give you some hint as to what our time up here has been like. That’s how my sweet (snarly), lovable (growling), snugly (mean) , little angle (devil) child is today. But what do we mom’s do in this situation? We love them even more- we hug them more, we kiss them more, we hold their hand more, we just sit and pray more- we do more of the little things that we know won’t immediately help, but that is ALL we can do- so by damn, we will do it to the absolute best of our mommy abilities!
A lot of you knew that we were planning on Tucker getting his pick-line out on Tuesday and getting a port put in….. but that didn’t happen. We waited and waited but they had so many emergency surgeries (aww, sad!) that a non emergent surgery like Tucker’s got bumped so far back that we elected to try again in 3 weeks after he recovers from this round of chemo. So in April sometime—cross your fingers! Ports are awesome and we are excited for it.
Tucker’s friend in his class did this awesome thing, he started his own fundraiser. Jaron went out in his community and started selling pizza’s to raise money for Tucker. How sweet is that?! He said he got the idea when he went to the blog and saw the “Team Tucker” stickers and he wanted to do something like that. One thing lead to another and before we knew it KSL channel 5, was interviewing Jaron & Tucker. It will air on Friday the 25th at 6:50am.
Jaron, I was told by your mom that you read my blog all the time- You are so special! You’re amazing and your kind act was so selfless! You’re very caring, and truly did an RANDON ACT OF KINDNESS! Your parents are so blessed to have a special little guy like you in their life. I will never forget you and what you did for Tucker. Thank you Jaron, thank you thank you thank you…..
As for this day being our last day up here- we are scheduled to release this afternoon- it may not happen…. One Doc says lets keep us another night to watch Tucker and get a better manage on his pain, and another one says you can go home but you’ll have to manage his pain on your own… I sense I have a choice here, and I’m not sure exactly what I’m going to do. I’ll need to talk it over with Justin and see what he thinks & I’ll let you all know. I think mentally for Tucker the best thing is to go home, he really hates it up here, but in dealing with pain-the best place for him is in the hospital. We will just have to see.
Love to all- Amber, Justin & snarly-grumpy-Tucker-bear

Tucker and his Teacher Mrs. Shipman

Justin, Tucker & Amber
Ewwwww, Dad kisses.

Worst Chemo EVER!